scouts-l Mail Archive for July of 2000: Re: Your indulgence, please...
Fri Jul 14 2000 - 15:52:56 CDT
Tom Petrik posted the message below, and I urge you to support his need
by contacting your Representatives and Senators on the Bill which Tom
mentions (Please Tom, post the S.xxxx, as soon as you find out it's
designation), and Senator Kennedy is planning on submitting.
Lest some of you get your backs up upon hearing Senator Kennedy's name,
let me tell you that disAbility issues tanscend partisan lines. This
Wednesday last I attended a Senate hearing for the Family Opportunity
Act of 2000 (S.2274) sponsored by Senators Grassley, R-IA; Kennedy,
D-MA; Jeffords, R-VT; Harkin, D-IA; Reed, D-RI; and, Moynihan, D-NY
AND, at last count, 49 OTHER SENATORS from both parties.
A similar House Resolution has been submitted by Hon. Pete Sessions,
This legislation would allow families with disAbled youth to "buy-in" to
Medicaid where their current insurance fails them regardless of their
income. Poinant testimony was provided by Air Force Sergeant Gordon Fay
who would have to turn down a promotion so that he could retain Medicaid
for his daughter who has Angelman's syndrome. Others testified how they
have to run bake sales, etc. solely to secure the resources necessary
for vital medical care. Families are often forced to choose between
poverty, bankruptcy, or giving their child up to their State just to
secure needed services.
So, if you want to help contact your Representative and urge her/him to
throw support behind Congressman Sessions' resolution. There's a lot
happening in the area of health care in these waning days of the 106th
Congress - so tune in and turn on.
> Date: Thu, 13 Jul 2000 12:12:31 EDT
> From: EC92@AOL.COM
> Subject: Your indulgence, please...
> I just received a copy of this press release. As most of you know, my #3 son
> Chris has Fragile X Syndrome. Now, all this is nice, but if you know a
> Senator, Fragile X has been in and then out and then in again and out again
> of a bill for funding research that is in the Children's Health Act that
> Kennedy is suppose to bring before the Senate in the next day or two, if you
> have activist under your skin someplace.
> Tom Petrik